The CIDR consent model controls the consent of the patient for their CIDR record to be accessible. By default, all CIDR patient records will have a consent status of “opted in”, but the patient can “opt out” by withdrawing consent for their CIDR records to be viewed. By doing this the CIDR record will be “locked”. See below for further information on the consent model.
What consent models are being used to create an individual’s record?
CIDR has used implied consent to create the record which contains information made available to support a patient’s care within Camden based on all patients registered with a GP in Camden. However, since 1 February 2016, every patient that first registers with a GP in Camden has been asked for explicit consent to participate in the service.
What consent model is being used to view an individual’s record?
For viewing of any records, the CIDR service uses explicit consent. This will be provided by a patient or approved representative when they are asked to allow sharing of information available on CIDR between other organisations or to allow a health or social care professional to view these records.
How to gain consent to view records?
If explicit consent has not already been given, a health and care professional should ask the individual for consent to view what information is available through the CIDR system. They should understand: 1 The sources of information in CIDR. 2 The likely information shared from each source. 3 Who will be able to view the record after they have consented and for how long. 4 That they are able to withdraw their consent to view the record at any point.
How can a patient “opt out”?
A patient can opt out either completely from a CIDR record or just for specific data from certain organisations at any time. To opt out completely from having a CIDR record the patient should contact the GP practice, who will record their option and amend their GP record. To opt out from sharing information from a specific provider e.g. UCLH, the patient should contact the relevant organisation and inform the relevant health professional or the organisation’s IG Lead.
If a patient decides to opt out, what are the implications on care?
Opting out of CIDR may have a detrimental impact on the ability of a health or social care professional to treat a patient in the best possible way, but it should be made clear that patients/residents can opt out at any point.
What is a “Break Seal”
There are certain special circumstances that a care professional may be allowed to access a care record without asking for consent. For example if the patient has arrived in A&E and is unconscious but has a CIDR record. In all cases, this access is time limited, and must be updated as soon as explicit consent can be obtained.